After long and tiring process was diagnosed with Cushing disease in June 2011.
Had a surgery to remove pituitary tumor in July 2011.
Remained on the cortizol for 18 months.
If you live in New York metropolitan area and have a pituitary tumor and would like to ask some questions or need suggestions, please email me.
I have seen the worst of this disease, but was able to make it through. I was lucky to have right doctors (neuroendocrenologist and surgeon).
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Jan 19, 2014 @ 20:54:40
hello…. i have the same thing . an tumor that has been diagnosed as Cushings. I live in NYC ( Brooklyn) and i am looking for a good PCP doctor who understands my disease and can help me. I have had 3 surgeries to remove the tumor. Unfortunately it is still there. It continues to grow. I am on an medication now that somewhat controls it. Its called Signifor. It has some side affects that are not too good yet better than not having the drug at all and walking around miserable. In short i would like to know if you can help me find True doc that know what i am going through and can help me.
Mar 06, 2016 @ 13:01:01
I live in NYC and current looking for an endocrinologist who can help diagnose me. Any recommendations?