18 months ago I underwent an adrenalectomy (L) for a benign mass. My cortisol levels were slightly elevated, all tests suggested sub clinical cushings.
Before the surgery I felt great, no symptoms other than easy bruising, bleeding gums and mild hypertention. In fact, the reason I went to an endocrinologist was because I thought i had a hypothyroid issue and my fasting blood glucose was always around 110. The adrenal mass was an incidentaloma during a scan of my pancreas/abdomen.
During the surgery I suffered a positioning injury to my shoulder, arm, and hand. Permanent nerve damage and horribly painful to this day. My initial post op replacement dose of cortisone was 10mg twice a day even though the surgeon and my endo were quite aware of my injuries. I felt like I was dying. Short of breath, chest pain, no sleep ever to this day.
Finally after 6 months a doctor at the hospital were I worked as an RN took over and directed me to pain management and ordered MRIs. Torn muscles, bursitis, tendonitis carpal tunnel and ulnar nerve entrapement etc….Since then i have had to change endos because mine has become rude and my appointments brief. I make 0.5 cortisol, nothing.
I am still on disability and will be terminated permenently in September. Every morning I lie there writhing in pain, short of breath, crying. I am so lethargic once I force myself up I bump into things. Some days I can’t get up at all. All pain management wants to do is inject steroids. I have had 3 nreve blocks and a spinal stimulator trial which did more harm than good. I KNOW I am in steroid withdrawl but what do I do now?
It’s been 18 months and I can’t find an endo who will pay any attention to me…………….I also believe I still have a thyroid problem. My levels are ‘borderline’ just like my cortisol was but the symptoms are all there and very obvious. Plus my cholesterol ,untreated, is 295. I don’t eat junk at all. never did.
My meds are Hyzaar, lipitor, neurontin, calcium, prozac,and 10mg of cortisone a day. I ditched the vitamin d3 because they only check my D-25 not 1-25 D and I am afraid of having dysregulated Vit D metabolisn which increases inflammation…..
I don’t know what to do. Help 🙁
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Jul 23, 2013 @ 13:54:18
I also had bursitis and tendonitis… I am a tennis player and my orthopedic surgeon, Dr Purita who treated my joints problems told me that the reason behind my tendonitis was repetitive movements and for my bursitis was my tennis shoes. Anyways, I don’t want to go over the details as to why I used rubber shoes that was a bit small for my feet (I really liked its design! LOL). I had the stem cell treatment in 2010, which was scheduled for 7 weeks (every Thursday). The therapy went well as we expected, my body cells were so active and responsive (haha). The therapy took effect 4 months after and I never had problems with my joints again… Thanks Doctor!